“Run-the-World 4 Parkinson’s Disease” began as a physical challenge that would
allow me to pursue my two favorite hobbies, sports and travel. Shortly thereafter, the concept of a
fund-raising campaign started to take hold.
To raise funds for Parkinson’s Disease research, “Run-the-World” was
linked to Team Fox. Through this
association, “Run-the-World” has begun raising money for the Michael J Fox
Foundation and it’s hoped that we will continue to make a significant
contribution.
In addition to donating to Parkinson’s Disease research, others expressed
a desire to more directly assist those affected by Parkinson’s Disease today. It was in response to these requests that the
444 Parkinson’s Foundation was established.
With the name based on my 444 theme (diagnosed at age 44 and 4th
year since diagnosis), the foundation has come together over the past few months.
The board of directors has been assembled with a broad background of experience
including law, medicine, travel writing and public administration. Administrative tasks, such as creation of
bylaws, incorporation with the state and applying for tax exempt status with
the IRS have been accomplished. The initial goals of the foundation have taken
shape, as well.
As life expectancy around the world is extended there is an increasing
demand to care for those affected by chronic diseases, especially disorders seen
predominantly in the elderly like Parkinson’s Disease. Many ventures are in place to raise awareness
of the needs of those with Parkinson’s Disease.
It is our desire that 444 Parkinson’s Foundation can add to these efforts. Through the connection with “Run-the-World”, 444
Parkinson’s Foundation plans to raise money to bring those with Parkinson’s Disease
from around the world to the next World Parkinson Congress, which will be held
in 2016 in Portland, Oregon. The World Parkinson Congress brings together
physicians, researchers and patients and provides the perfect forum for all
three groups to share thoughts. It is
hoped that 444 Parkinson’s Foundation can help add even further diversity to the
attendees of the World Parkinson Congress and provide additional insight into
the needs of those affected by Parkinson’s Disease worldwide.
Thus, the formation of 444 Parkinson’s Foundation has allowed me to add a
third goal for “Run-the-World”:
MY GOALS FOR “RUN-THE-WORLD 4 PARKINSON'S DISEASE"
- Overcome a personal challenge to demonstrate what can
be accomplished by those with Parkinson’s Disease, including physical
activities, travel and military service.
- Provide an opportunity for those who want to help fund
Parkinson’s Disease research to contribution to the Michael J. Fox
Foundation
- Help tell the story of those affected by Parkinson’s
Disease around the world through social media and funding travel expenses
for those with Parkinson’s Disease to attend the World Parkinson Congress
in Portland, Oregon in 2016 to tell their stories of living with
Parkinson’s Disease worldwide.
This week
the 444 Parkinson’s Foundation takes another step forward as we launch the Foundation
website. The site offers a simple method
to submit donations, an opportunity to communicate with the Foundation and will
provide periodic progress updates on the Foundation’s activities. Thanks to all who have shown interest and
support leading to the establishment of the 444 Parkinson’s Foundation and
thanks to all that support our future endeavors.
