Tuesday, June 16, 2015

Parky of the Caribbean

     Last week, Parky and I made it to 6 Caribbean nations.  For those of us counting countries, that's 11 for Parky and 118 for me. Don't forget to start making your plans to join Parky in Portland, Oregon for the World Parkinson Congress in September 2016!!


Grenada
   

St. Vincent
  

Saturday, June 13, 2015

Running Across Antigua...searching for the finish line

      Given that I had missed my flight to Antigua, my run there started later than planned and I finished after sunset.  However, the added challenge made the satisfaction even greater when I completed my run across the fifth island in five days.  The next morning I was able to walk around the town of St. Johns, before catching my flight back to the States.  Here are a few of the images:
  

Friday, June 12, 2015

Driving Across Dominica...in search of a soccer game

      This morning I woke to find that my rental car battery was dead. I left the car in Roseau, took an hour-plus taxi ride across the island to the airport and still ended up missing my flight and radio interview.  On the bright side I had plenty of time to put up a post while waiting for the next flight from Dominica to Antigua.
     My wife has long accused me of planning all our travel around soccer games.  This is not actually true...sometimes I plan the travel first and then look for the soccer later.  That was the case with Run-the-Caribbean. After I selected the countries that I planned to run across - I became aware that regional qualifying for the 2018 World Cup would occur while I was in the islands. When I scanned the list of fixtures, I found the perfect one - Canada vs. Dominica.  This was ideal because Dominica didn't have a reasonable running route across the island, it had a number of natural sites that I wanted to visit and Canada featured a player from my favorite club, Portland Timbers.  So my schedule was set to ensure I would be in Roseau on June 11th.
      My travel from St. Kitts, started with another ridiculous exchange with airport security. I arrived at the modern, comfortable St. Kitts airport only an hour and half before departure, but was happy to find that I was the only person in the check-in line for Liat Airlines, the only person in line to have their boarding documents reviewed, the only person in line for emigration, and most importantly - the only person in the security line. As the four security staff members stood up from their chairs I placed my laptop and cellphone in a bin and then asked if they wanted me to take out liquids. When the answer was "yes", I place my bag containing 3 packets of laundry soap, a nearly empty sunscreen bottle and a small shaving cream can in a second bin. That's when the security staff asked me if I had a smaller bag. I was puzzled. She gestured to a "smaller bag" with some items inside hanging from the wall, and stated, "You should use a quart bag.  You have a gallon bag".  Thinking this was a suggestion, I thanked her for the information.  She then asked me, "So do you want to go back out and see if you can get a bag?"  Now in most places in the world this strict enforcement of "the rules" meant one of two things. Either we were about to have a stand-off to see if I would flinch and pay a bribe or there was a near-by shop/stand in which the owner sells nothing but quart-sized zip-lock bags at an astronomical mark-up. In this case, the official seemed not to be looking to profit, but just requiring strict adherence with "the rules". I surveyed the situation. The cost of the items in my bag was approximately $4US. Even if I could find a quart bag, I didn't know what the cost would be. Without laundry soap, I could wash my clothes with shampoo (which is what I usually do anyway), sunscreen could be purchased anywhere in the Caribbean, without shaving cream I would have one more excuse for not shaving, and getting rid of the bag of liquids would simplify procedures during my connection in Antigua.  Realizing the clear benefits, I let the security staff know - "thanks, I'll just leave this stuff for you".  Thus allowing me to clear security and allowing the staff to sit down and plan their next "shake-down".
     Once in Dominica, it was immediately evident why this island is known as the undeveloped, natural gem of the Caribbean.  I was only a few miles down the road in my rental car, when I felt the need to pull over and snap a few pictures of a beautiful, deserted beach.  After driving across the island, I had one place to visit before checking into the hotel. Trafalgar Falls was on all the lists of top sites in Dominica and it was definitely worth the trip.

Wednesday, June 10, 2015

Running across St. Lucia and St. Kitts

     Fortunately, my runs across St. Lucia and St Kitts did not bring me any misfortune.  After about 20 more miles of running, I just had more soreness in my muscles, more great images of the islands and one proud moment.  As I completed immigration in St. Lucia, the official found that my passport was too thick to squeeze through the little slit in the window typically used for this exchange. He looked perplexed for a moment, then defeated - got out of his seat and walked around to the other side of the glass to hand me my passport.  I'll have to added this to the, "You know you are obsessed with travel when _______" list.

Running and Recovering in St. Lucia

   

Tuesday, June 9, 2015

Running Across St. Vincent...taking selfies

      As I stated in my last post, my plan for blogging this trip was to post a series on photos from each island...I had not planned for those photos to be limited to selfies.  In St. Vincent, that's what happened - here are the images and the explanation.
The West Coast and the new airport under contrustion
Climbing the mountains...again

Monday, June 8, 2015

Running Across Grenada...in search of food

      My brief stop  in Grenada found me wandering historic St. Georges on a sleepy weekend, struggling to run-hike 15 miles over the island's central mountain range and enjoying the quiet, beautiful beach near my hotel...and hunting for food. Here are some the images from my time in Grenada...
On top of St. Georges
My travel buddy - Parky

Saturday, June 6, 2015

Solo Running

      This afternoon I arrived in Grenada for the start of my short, but intense, run through the Caribbean. Since I planned my Run-the Caribbean 2.0 itinerary, the goals for this journey haven't changed. Over the next week, I will be traveling to six island nations that I have not visited in the past. During five of the days, I have runs planned to cross islands from shore to shore.
      From my prior travels through smaller countries and my earlier contacts in the Caribbean, I was aware that it would be a long shot to identify Parkinson's support groups on any of the islands. This has proven to be the case. Whether hidden from me or, more likely, not yet established - it's clear I won't have any such groups to partner with over the next week. On the other hand, I have been fortunate to become acquainted with a few journalists and have tentative plans for some broadcast interviews. Over the past year, I have had a number of chance connections facilitated by media spots that have led to fruitful relationships to help further Parkinson's awareness - so I'm hopeful this will also be the case in the islands that I visit.
 
   

Tuesday, April 28, 2015

Run-the-Caribbean 4 Parkinson's, version 2.0

       When I returned home from the Caribbean last month, my hope was to make a quick return to continue my travels, running and efforts to raise Parkinson’s Awareness throughout the region. Although I could not coordinate to resume my itinerary where I left off, I am happy to say that I now have a plan to return in June.
        While I was only in the Caribbean for a week in March, I was very fortunate to make some special contacts in Barbados and witness what felt like the birth of Parkinson’s Awareness in the country with the Barbados Parkinson’s Awareness Walk and the establishment of a Parkinson’s support group. This experience gave me a new perspective on the needs of those affected by Parkinson’s in the Caribbean and an inner circle of people to help guide my endeavor to do a small part to advance their cause.
     

Wednesday, April 1, 2015

Promoting The Global Parkinson's Pledge

“We, the undersigned members of the global Parkinson’s community”

          This is the introductory line of the Global Parkinson's Pledge.  My hope is that no matter what your connection to Parkinson's Disease - you will take a minute to join "the global Parkinson's community" and add your name to the list of those who have signed the Global Parkinson's Pledge.
          In 1997, the first meeting of the World Health Organization Working Group on Parkinson’s Disease was held in Geneva, Switzerland.  The summary report included five recommendations that you can read here:     Parkinson's Disease and Public Health
          The working group also produced the Global Declaration on Parkinson’s Disease, which was signed by representatives of the WHO’s six regions.  The actions of the working group and the documents they produced became the basis for the Global Parkinson's Pledge, which "was launched at the second World Parkinson Congress in Glasgow, Scotland on September 28, 2010." The Pledge continues to be promoted by the World Parkinson Coalition and I first became aware of the Pledge at the World Parkinson Congress in Montreal in 2013.


 “We therefore call upon governments, health agencies of the United Nations system, and patient-oriented non-governmental organizations (NGOs) throughout the world to:"

Tuesday, March 10, 2015

Suriname: Alone in the Amazon

             After a quite hectic first 36 hours of traveling, I was looking forward to a chance to recover during my first of two nights in Suriname and then this happened…

    Getting from the 5K race finish line in Speightstown, Barbados to my hotel in Paramaribo, Suriname actually went well. The taxi ride, covering nearly the entire north-to-south length of Barbados at sunset, was beautiful - and the slow, friendly pace of driving was a pleasant contrast to the mean streets of my home, Las Vegas.  My flights from Barbados to Port-of-Spain to Paramaribo, both had welcomed early departures and early arrivals.  My time in the airports was only remarkable for a single proud moment.  As I went through security re-screening while in transit in Trinidad, I quickly and efficiently went through the typical process of partial undressing/unpacking prior to passing myself and my bag through x-ray scanners.  But as I approached the metal detector, one of the four persons on the security detail, flashed me an unapproving look, pointed to my pocket and asked, “What is in there?"  I replied, “Just my passport”.  While the others looked as if they were about to break into applause to reward her for her attention to the detail  of my bulging pants pocket, she came back with a skeptical, “That is all?”  All of their faces turned to the puzzled expressions of children who has just seen a magician  pull a rabbit out his hat for the first time when I reached into my pocket and pulled out nothing, but my prized possession - a blue passport that has so many added pages that it acts as if it is held together my a spring-loaded hinge.  I somewhat triumphantly replied, “Yep, just my passport.”


          Once in Suriname (arriving at 1 AM), I was one of only two passengers, who needed to purchase a visa.  This wasn’t a particularly difficult process, but it did involve handing over $25 USD – of which three bills were rejected for folds, writing and/or  tears - and meant that I reached the immigration line well after everyone else had left.  This was fortunate because for some reason, it took the involvement of all three immigration officials on-duty and over 10 minutes before my passport was stamped and I was waived through with a smile, but no explanation for the delay.

     After a 45 minute taxi ride to the city, I climbed out of the cab and was relieved to see a beautiful hotel façade in a quiet residential area.  That was followed by an immediate sinking feeling that my luck was about to turn when I noted that the building was particularly dark and there was a padlock on the front gate.  As the taxi driver started to drive off there was a short pause, and you could tell he was thinking - “I should probably help, but if I stop now who knows when I’ll get home and it’s already 2:30 AM”... and he drove off.

Saturday, March 7, 2015

Parallels with 1492



Genoa 2011
Lisbon 2015
     It’s been 15 years since my wife and I walked the streets of Christopher Columbus’s hometown of Genoa and 1 year since I ran through Lisbon, his first stop after making the journey that began the written history of the Caribbean. 
     Now, on the eve of my departure to Run-the-Caribbean 4 Parkinson’s Disease,  while scrambling to finish the last minute preparations that don’t meet the threshold for something-I-can-still-do-after-I-leave-home, I am drawn to some parallels with the history of Columbus’s first voyage that I recently read.
                                                       
     As Columbus struggled to find support for his endeavor, I've found it somewhat difficult to find and establish contact with others that are currently involved with Parkinson’s support and/or medical education throughout the Caribbean. However, just as Columbus finally found the backing he needed in King Ferdinand and Queen Isabella of Spain, I have been fortunate to find a couple groups to partner with during my trek through the Caribbean.


      In October 2103, I attended the World Parkinson’s Congress in Montreal. As some of you know this meeting, which brings together People with Parkinson’s, clinicians and researchers, had a big impact on me. With the next WPC planned for Portland, Oregon in 2016, I am try to help promote the conference. During Run-the-World 4 Parkinson’s Disease last year, we were able to raise $6000 that will go toward travel grants for those with Parkinson's to attend the WPC in 2016. During Run-the-Caribbean you can still support this cause by donating through the following link: 444 Parkinson's Foundation.  However, this year my energy will be focused on my primary goal of raising awareness of the WPC rather than fund-raising.

Friday, January 2, 2015

The Stories of Athletes with Parkinson's Disease

     With excitement about the upcoming Victory Summit in Las Vegas sponsored by the Davis Phinney Foundation and some leisure time around the holidays for reading - I thought it would be good to share thoughts about some of the books that I have read about athletes with Parkinson's and hopefully get comments about other books that people have read.

     Shortly after I was diagnosed with Parkinson's disease, I read "Lucky Man" and "Always Looking Up" by Michael J. Fox.  I found reading these books, especially hearing about familiar emotions associated with experiencing the early symptoms of Parkinson's, to be particular helpful at that time.

                                                         

    After that I turned to the stories of my traditional idols - athletes.  The tales of athletes with Parkinson's symptoms that interfered with not only the physical activities of daily living, but also the activities of physical competition, gave me a framework to process thoughts about the potential impact of Parkinson's on my sporting hobbies.

     I still remember the day that I was on the treadmill in a hotel gym in Fort Lauderdale and looked up at the tv to see a person with Parkinson's in an Oregon State hat (I'm a Beaver).  After watching the rest of the ESPN segment on Ben Petrick - I immediately ordered his book, "Forty Thousand to One".  This was the first book I read about an athlete with Parkinson's.  The fact that he grew up in Oregon, the same state where I attended college and medical school, added to my identification and appreciation of Petrick's story of struggles and successes in dealing with the challenges of Parkinson's Disease, which cut short his major league baseball career.

                                                                                  

Sunday, December 7, 2014

Further Thoughts on Parkinson's Awareness

     As I am beginning to prepare for next year's "Run-the-Caribbean" project, a couple events have made me think more about efforts to promote Parkinson's awareness. 

     When I first decided to go forward with "Run-the-World", I imagined a small fund-raising campaign, similar to other projects that have garnered money for disease research. However, I quickly remembered that my talents are not in the world of sales and I began to gravitate toward a goal of promoting disease awareness. This led me to consider a threefold purpose for Parkinson's Disease awareness campaigns...

1. To avoid PwP feeling the need to hide the diagnosis
2. To keep others from feeling pity for those with Parkinson's
3. To make the general public "comfortable" with Parkinson's

...and a three-step approach to individual participation in the Parkinson's awareness process:

1. Inform yourself
2. Inform your family and friends
3. Inform the general public

      

     During "Run-the-World", I was extremely fortunate to have exposure that far exceeded my expectations. In fact, I am now discovering that the media attention was far greater than I realized during my travels.  I just recently found many of the articles and video segments that where made along the way. I've done my best to catalogue these by establishing a tab on my homepage titled, "Media Coverage".
                                                             Click her for "Media Coverage" page

Sunday, October 5, 2014

Next Steps...Caribbean Islands and Beyond.

     Two of the most common questions I was ask after I completed "Run-the-World 4 Parkinson's Disease" were:  Would you do it again? - and - What will you do next?

     Although I would always answer "yes" when asked if I would do it again, I really didn't have any plans for a follow-up challenge.  In fact, during the first couple months after getting home I didn't think about it much. However, as time went by I realized that I had an opportunity to channel the exposure that "Run-the-World" had gained into a new challenge and hopefully further awareness about Parkinson's.  That led me to started considering new travel routes into which I could incorporate a running challenge. It also got me thinking another challenge that I have had in the back of my mind for some time.


Thursday, August 21, 2014

Final Thank You!!!

     It has been 3 months now since I returned home for my last of 44 runs in 44 countries.  My journey was an incredible experience and I want to thank those that made it possible one more time.


Thank you to the many Parkinson's Organizations, Support Groups and Medical Providers:

Saturday, July 26, 2014

UK - Discoveries: including the home of Dr. James Parkinson

197 years ago, Dr. James Parkinson published, “An Essay on the Shaking Palsy”.  Today his former home is marked with a simple plaque.  The search for that plaque was the focus of run #43/44 in my journey.


In the Preface to the article, Dr. Parkinson wrote, “The disease is of long duration: to connect, therefore, the symptoms which occur in its later stages with those which mark its commencement, requires a continuance of observation…these advantages the writer has had the opportunities of availing himself, and has hence been led particularly to observe”.  Many times throughout my travels and since, I’ve been asked what was the most important thing that I learned along the way.  Similar to Dr. Parkinson’s advantage of observing those with “shaking palsy” over time, the most important discovery I made was the result of the advantage of observing so much of the world in such a short time.

Monday, July 21, 2014

Norway and Iceland - Northern Sights

My overnight stop in Oslo was again - very brief.  As I was looking forward to meeting up with my parents the next day in Iceland, my time in Norway seemed even shorter that it was. However, with a lack of major expectations, my night was to include several "successes" that are good examples of the small things that defined my daily success on this crazy journey.


Friday, June 20, 2014

Morocco and Portugal – The Joy and Frustration of Travel

One of the most common questions I have been asked since I returned home is, “Where would you most want to go back to?”  Given that one of the things I missed most while traveling alone was not being able to immediately share experiences with someone, the places I most want to go back to are the places that I think would be most fun to travel to with my wife, Lila.  At the top of the list, in addition to Petra, is Morocco.

Monday, May 26, 2014

Germany, Switzerland, Liechtenstein...Counting Countries

          When I set out a plan to run 4 miles in 44 countries in 4 weeks, I knew I would have short stops in many countries.  Over the years I have heard, and participated in, a number of discussions regarding what the criteria should be for counting a country as having been visited - even hearing from a number of people who denounce the practice of "counting countries" all together.  The most common contention is usually that you cannot count a country in which you were only in the airport.  Therefore, one of my favorite definitions is that you have to purchase something outside of the airport.  Fortunately, on this trip I had very specific criteria for each stop to meet...I had to run 4 miles.


Saturday, May 17, 2014

Run-the-World 4 Parkinson's Disease - The Movie

Since arriving home, my free time has been dominated by two related activities - preparing for the Homecoming Celebration and creating a presentation from my photos and video clips.  Below you can watch the movie and see some photos from our celebration gathering.

Run-the-World 4 Parkinson's Disease - The Movie.